The gang is back with another episode to MELANTE YOUR PALATE and FEED YOUR SOUL!!! num num numWe discuss Sickle Cell Awareness Month and what we NEED to do to get NY State Legislators to support the 2019 Sickle Cell Treatment Act A6493 and S2281***Special Guest***Ginger DavisShe is the spokesperson for Sickle Cell Disease, the Coalition of Inherited Blood Disorders, and Rare Diseases. She is also a member of the NAACP Brooklyn Branch.For more information about sickle cell disease, and links to resources, visit https://sctpn.net. Look at the Events page to see the listing of activities, and check out the Media page to see news clips, and read the Blog.The Sickle Cell Thalassemia Patients Network (SCTPN), in collaboration with Candice’s Sickle Cell Fund (CSCFI), Queens Sickle Cell Advocacy Network (QSCAN), and the NYS Sickle Cell Advisory Consortium are hosting a press conference on the steps of NY City Hall on Monday, September 9, 2019, 10:00 am, in recognition of the City Council’s adoption of the State Legislative Resolution (SLR 335).The Sickle Cell Thalassemia Patients Network is located in Crown Heights, Brooklyn. The listeners can call (347) 533-8485 to speak with a Community Health Worker about their concerns.
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